Being disabled is difficult for many reasons, one is knowing what is too difficult for me and knowing what is too difficult for others to do for me. Being in public for me is very difficult because I have to expose my disabilities and how people react to what they see can have a huge impact on me, making me shy and incredibly vulnerable in public. Continue reading



I have an incredible amount of drama in my life. My life is tough(to put it simply) and creates a lot of drama for me, but most of my drama and stress come from family members who seem to like drama and are experts at creating it.

“Life becomes so much better when you decide not to join the drama. Just live for the moment and don’t let the drama bring you down.”

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Difficult Moments

Difficult moments are a part of everyone’s life, I have been through so many in my life that dealing with one more shouldn’t be this difficult. Every moment in my life has led up to this one and I ask myself would I be willing to change some of my good moments to erase some of the bad ones? No, because in life we need to accept the good and the bad moments together, because the good moments aren’t as good without the bad.  Continue reading

See How Much I Love You

I hate myself for every moment I can’t​ help myself, for every time I wake Stephen to help me move my legs so I can sleep, every time my younger sister helps me in the bathroom, every time I can’t prepare my own food or take a bath on my own. The list goes on and on, but I hate myself the most for not being able to show loved ones how much I love them.  Continue reading


I have always believed we were put on this earth to help each other and the fact that my disease took away my ability to help those that I care about has taken me a long time to learn how to live with, even though I’ve learned how to live with it; I don’t think I could ever learn how to be okay with it.  Continue reading